I was diagnosed with Cystic Fibrosis as a baby. For me, it has always been part of my life. Compared to many, my symptoms are mild affecting my lungs and digestive system. I take enzymes with every meal, am on oral antibiotics all the time, do breathing treatments twice daily and am occasionally hospitalized to place a PICC and receive a course of IV antibiotics. Growing up, I became interested in ballet and dance and was encouraged to stay active. I have tried to live my life and not let CF get in the way, which at times meant that I neglected my health in ways I probably shouldn’t and I paid for that usually with a stay in the hospital. I was able to go to college and be a normal student living far from home. I went on to have a “regular” job with a ridiculous schedule and tried to keep dancing at the same time. It wasn’t until I was in a motorcycle accident that I decided to slow down a little and try to build my life around the things that make me happy instead of just trying to fit those things in around a job that was no longer fulfilling. I think having CF has helped me to appreciate experiences and keep life choices in perspective.
May is CF awareness month. There are walks happening all across the country organized through Great Strides to raise money in support of the Cystic Fibrosis Foundation at the for front of life changing research.